It’s been a year – can you believe it?!
A year since we first laid eyes on him – my mystery baby
It has been the toughest and most miraculous year I’ve lived to see.
So we thought we would celebrate!
this is Great Grandpa Jack holding and praying for his namesake: Baby Jack for his party…
Jack, staying true to himself – did not eat his cake
though that did not stop us from being his biggest fans!
When people have been asking me how Jack has been after surgery… a million things go through my mind: from him not sleeping through the night, not eating any solid food, not rolling or sitting or walking, barely waving or talking… but then he smiles. Then he plays like a kid – a one year old! loves to watch other kids play, laughs out loud when you tickle him, loves basketball and football, loves to read books…. every doctor and specialist say that he is doing great for all that he has been through. People seem to think I should be happy that he will be okay… I struggle to watch my baby struggle… I want my son to flourish – do more than survive. How can I be his biggest fan and be the biggest doubter? He is truly a miracle. Right now he is looking at me from across the table, eating a toy car 🙂 he babbles to me and then everything falls into place again 🙂 Even in the middle of the night he talks so sweetly to me and strokes my face. He is teaching my how love is so much deeper than I knew it could be. It lies farther still than the things we achieve as humans. This year has been tough – a kind of diamond in the rough kind of year though, you know?
The way we have seen our family and friends come alongside us has been tremondously encouraging and humbling.
Jack has not “bounced back from surgery”
It seems as though the pressure on his brain has not gone away, though we will need tests and more time to tell that for sure. For now – please keep praying for Jack.
– For the hydrocephalus to lessen and for Jack’s brain to grow the way it should
– For his overall development: eating, sleeping, growing
– For him to tolerate therapy with less tears and struggle
– For his next hand/foot surgery that is scheduled for the end of October
– For his vision, his right eye has gotten much weaker since surgery and has been wandering a lot
– For us to care for all the needs we can, trust God with everything, and love fiercely.