The blood drive was a huge success! We needed 28 people and we got 31! This means that we were able to save over 90 lives! Praise God 🙂
A few weeks ago I had a conversation with a friend that stuck out to me.
I was telling her about the team of experts that was doing formal cognitive testing on Jack to determine which services would be appropriate for him this next year. It was so fun to see Jack do well! He is currently functioning as a 13 month old with his thinking skills – though his gross motor skills are limited to 6-9 months. He knew things I didn’t even know – like the difference between an apple or banana and which object was a shoe – even though he doesn’t wear them!
Since December when they did the surgery for his hydrocephalus we are seeing Jack grow and mature literally every week he is gaining new skills.
His sign language is getting better and he is quite a communicator! He is finally learning how to eat real table food 🙂 and is a bottomless pit! But his full stomach is allowing us to occasionally sleep through the night! Which is such a blessing I cannot even tell you how good it feels to sleep uninterrupted from time to time.
As you can imagine I was rambling all of this to my friend who kindly smiled but responded, “Didn’t you say at the beginning that Jack was going to be normal?”
It’s true! I did say that didn’t I? Well…. good thing normal has a very large range! haha….
In all reality though, this statement popped my balloon a little. It made me realize that I had stopped believing for awhile. Not like I had given up hope… but somewhere along the way a dark reality creeped in that he may never be able to do the things I dream for him to do. It’s such a balancing act isn’t it? This whole parenting deal – or really… life.
How do you live in total acceptance of where your child is right now and not pretend like everything is going to be a raving success in the eyes of the world… All while reaching for yours and their highest potential?
Last fall was so dark my friends… Jack struggled in every area of life. I guess your brain really does need room to breathe! My heart aches so badly for those months that almost seem stolen from us in one sense. He is trying so hard right now to overcome those lost days and he is succeeding at every turn….
The truth is simple: that it really will be a long road.
God has been doing so much in my heart though…. I may just burst if I don’t share some of them…
I have been finding much peace in the psalms lately… psalms of promise like this one:
I lift up my eyes to the mountains—
where does my help come from?
2 My help comes from the Lord,
the Maker of heaven and earth.
3 He will not let your foot slip—
he who watches over you will not slumber;
4 indeed, he who watches over Israel
will neither slumber nor sleep.
5 The Lord watches over you—
the Lord is your shade at your right hand;
6 the sun will not harm you by day,
nor the moon by night.
7 The Lord will keep you from all harm—
he will watch over your life;
8 the Lord will watch over your coming and going
both now and forevermore.
Those days where it doesn’t seem like he’s keeping me away from harm? I realize it is on those days I probably forgot to keep my eyes looking toward the one who helps me.
The other tremendous promise he has given me is this:
28 Therefore, since we are receiving a kingdom that cannot be shaken, let us be thankful, and so worship God acceptably with reverence and awe,
In a house that has a now three year old little princess… I have been newly enthralled with the fact that Jesus is my king.
The king that laid aside his throne to come and save me and is now establishing his new kingdom in ME and in you! It is true that I have been entrusted with this treasure and I have been so overwhelmed with JOY at this.
This joy is what keeps me strengthened. Not that Jack is growing and learning and becoming exactly who he is meant to be… no… that is just fuel for my worship of the one who gave us life and freedom to love Him and to love Jack and Lucy and anyone else who I come across on my way 🙂